Big Dr. Appointment

Well Eden's Big Doctors appointment with her surgeon was on Monday the 27th, it seemed like we have been waiting for ever for this appointment and now that it's over we are so relieved. We started off the day with the CT scan of her belly at 8am down at primary's Eden couldn't have anything to eat after 4am in the morning until after her scan. So i had to wake her up in the middle of the night to feed her because she has been sleeping through the night for the past week. And of course that one night of waking up has now started a trend of her waking back up in the middle of the night, Lucky me!! Any way got down there and of course she is hungry but still being a really good baby. She has to drink oral contrast for her CT and she is not liking that at all they have put it into 6 ounces of sugar water and want her to drink as much as she can. She is getting madder by the second, firstly it isn't what she want and secondly the water comes so fast out of the nipple she keeps choking on it. Any way after forcing an ounce down her they come in to give her her IV and three sticks and a super sad baby they finally get it in, and than back to more contrast. I think we only ended up with 2 1/2 ounces out of 6 but not too bad. So after the contrast was down we had to wait an hour before they could sedate her, but if by chance she feel asleep they could try and scan her without sedating her. After all her crying she was exhausted and fell asleep, so we got to do the scan with out being sedated Yeah!!!!! Our Dr appointment with Dr. Meyer was all really good news the mass on her liver ended up just being just cyst and the scan showed that they have shrunk in size quite a bit from April, so we will do another Ct when she is a year and just keep watching it. We did have her look and her herniated belly button and she said it is borderline as to whether to fix it or not so we are just going to watch that as well. But we have been so blessed Eden is a amazing baby and everything seems to be turning out for the best, we definatly have had some miracles.

Life at Home

Sunday May 22:
Eden has been home with us now for just over a week now, it hard to think she is really a month old and not my little newborn. But is guess one advantage of having her be a month old she has slept for 5 hours the last two nights. I forget how sleep deprived you get with a baby, but 5 hours has been like heaven!! We go in tomorrow for a 2nd weight check make sure she is still gaining weight. I don't think she is going to have a problem there she loves to EAT!

Big News for Maelyn she pooped in the potty today!!! First time for pooping YEAH! she has been starting to pee in the potty at least once a day. Hopefully we will be potty trained by her birthday.

Tuesday May 24

Okay blogging at home with the baby home seems to be so much harder than when she was at the hospital.
Eden's doctor appointment went great she weighed in at 9lbs 13 oz. A total weight gain of 9 oz. The dr. said they like babies to gain about 4 to 7 oz a week, so Eden is doing really good. He told me to keep doing whatever I'm doing.

Life At Home

Well everything is going really good. Cole and Maelyn are adjusting to having their little sister home and constantly want to hold Eden. Cole is a great big brother and will just sit and hold and talk to her. Eden had her first doctor appointment. And everything looks really good. She left the hospital weighing 8lb 13 oz and weighed in today at 9lb 4oz so she is gaining weight good. We were just told to watch her close and a few warning signs to looks for but other than that Eden is doing really great. We go back in next week for another weight check.


We have to hold first thing in the morning!

Day 24: Friday May 13

Eden's home!!!!! Friday the 13 is a good day for us! I went down this morning to take Eden some milk, I had called down there earlier and they said it look like we could bring her home tomorrow. When I got down there the nurse said they had decided that they could discharge Eden today. I wasn't going to complain about that. They were still waiting for surgery to come and pull out her central line, they were really busy and didn't know when they were going to make it up there to do it. So after talking to Todd, we decided that I would just stay down there and bring her home and he would get the other two kids.
So I waited until 2:30 when the surgery nurse practitioner came up to pull it out. They got her all draped in sterile cloths and cleaned up with betadine, then they numbed up the area with lidocane so it wouldn't hurt so bad, I guess the catheter has a small knob on it that the tissue adheres so it kind of hurts when they pull it out. She did cry a little bit but not as much as I thought she would, she is one tuff cookie. After that we just waited around for all the discharge paperwork. At about 4:30 all the paperwork was done Eden had a few final exams and away we went. She has a follow up with the surgeon in 6 weeks and will have a CT of her belly before she goes to see her, to make sure the tumors on her liver haven't come back. Eden was an angel on the way home didn't make a peep all the way home. We got home just a little after 6 and Cole and Maelyn were waiting to see their new sister. Cole thinks she is just so little. Maelyn loves her new little sisterbut we are going to have to watch a little close so she doesn't love her too much. Both grandparents come over to see her and even Bryce made it out to see her. We are so grateful to have her home thank you everyone for all your prayers and love we know that it helped get her home so quickly we are truly blessed.

Day 23: Thurs May 12

Everything is going good. They are thinking Eden could possibly go home as soon as this weekend. They need surgery to pull her central line and to sign off on everything but she is basically ready to come home. And we are ready for her too!!!

Day 21: Tuesday May 10

Eden is officially 3 weeks old, Oh how time flies. They changed Eden's room on us she is now in the bed across from where Cole used to be, a little de ja vu. Talked to the nurse practitioner today Eden is doing really well they are going to take her off her TPN (iv fluid they have been feeding her) and going to put her on something a little less nutritious because she is eating better, and if she does well on that they can take her off that as well. The surgeon is out until Friday so until then we aren't expecting any updates. Eden has become quite the little smiler (if only we could catch it on film) she will be really fun when we get her home with the kids.

Day 20: Monday May 9

They decided to take out Eden's final drain today. I guess they think the little bit of fluid she was still putting out is a small enough amount that her body can reabsorb it. Still haven't talked to the Dr. about the pathology report we heard the surgeon was going to be out of town until Friday. so we may not get answers for a little bit longer. She is eating better you just have to make sure you burp her real good. So we are slowly getting closer to bringing her home.